A Data Altruism Organisation is a legal entity established to carry out data altruism activities and operate on a not-for-profit basis. Data altruism is defined as the voluntary sharing of data on the basis of the consent of data subjects or permission of data holders, as applicable, for objectives of general interest.
Recognised Data Altruism Organisations are entities that facilitate data sharing in accordance with the EU Data Governance Act (DGA) (Regulation (EU) 2022/868). Under the DGA, Data Altruism Organisations play a vital role in creating frameworks for data altruism that adhere to strict governance, transparency, and security standards, building trust in the voluntary data-sharing ecosystem.